Posts Tagged ‘migraine stigma’

10 Migraine Myths and Misperceptions, Debunked

Monday, June 18th, 2012


 


 

“Migraines aren’t just really bad headaches.” That’s the battle cry of many a migraine sufferer when confronted with one of many migraine myths. Sometimes (most often), it’s not worth the stress and ultimate migraine headache to try to set the record straight with everybody you meet. Still, there comes a time when you need to speak up for yourself and migraineurs everywhere. For those occasions, it helps to be prepared with a few facts and a great comeback. Here are some good replies to the most common myths regarding migraines and chronic pain.

10 Migraine Myths and Misperceptions, Debunked

1- Alternative treatments are useless with migraines.

The age of herbal remedies and natural treatments being regarded as some sort of “witchcraft” is over.

Today, increasing scientific evidence proves that complementary alternative medicine (CAM) is the best, most effective way of maintaining neurological health and controlling blood flow to the brain, both of which are factors in successful migraine management.

Recommended natural ingredients and therapies for migraines include:

  • Vitamins (vitamin B2- riboflavin, coenzyme Q10)
  • Minerals (magnesium)
  • Herbs (butterbur)
  • Massage
  • Acupuncture
  • Yoga
  • Biofeedback
  • Low-impact aerobics

2- Some natural ingredients for migraines, like butterbur, are poisonous.

Not all brands of butterbur are unsafe.

Certain types of butterbur (Petasites hybridus) may contain pyrrolizidine alkaloids (PAs), a toxic chemical that may cause liver damage. However, butterbur root that is processed for removal of PAs are as safe to use as traditional migraine medications, and cause no harmful side effects. Before buying butterbur pills, check that they are marked “PA-free.”

Butterbur is recognized by the American Academy of Neurology as extremely helpful in promoting good health and establishing a biological environment that is beneficial for migraine-free living, without causing any of the ill effects of conventional migraine preventative medicines, such as Topamax.


10 Migraine Myths and Misperceptions, Debunked

3- Migraines are just really bad headaches.

Actually, migraines are recognized as a neurological disorder.

This is perhaps one of the most hurtful (albeit unintentionally) statements heard by migraine sufferers around the world. Yes, the pain is horrific, and yes, headaches are a nearly-constant symptom of migraine attacks.  (Not all migraine attacks cause headaches.)

35 Things you should never tell a Chronic Migraine Sufferer

Still, other symptoms (some of them stroke-like) that often accompany migraine attacks are equally debilitating, including:

  • 10 Migraine Myths and Misperceptions, DebunkedSharp eye pain
  • Inability to tolerate bright lights, strong scents, or loud noises
  • Cyclic vomiting
  • Intense nausea
  • Visual disturbances
  • Brain fog
  • Fatigue
  • Temporary partial blindness and paralysis
  • Speech slurring, incomprehensive communication
  • Loss of consciousness
  • Muscular weakness

4- Chronic pain always requires hospital treatment.

Just because I’m not in a hospital, that doesn’t mean I’m not suffering.

Chronic pain doesn’t necessarily require admission to a hospital, and neither do migraines. Ultimate migraine pain management is safer, more practical, and most effective if practiced at home and at work.

However, in dire circumstances, such as head injury, heart palpitations, unusually excruciating headaches, paralysis, or abnormal pain symptoms you should not hesitate to call emergency services.

5- Real pain is always a result of a physical injury or illness.

Sometimes, the cause of chronic pain is not immediately apparent.

With chronic pain such as fibromyalgia, severe pain occurs in the absence of any noticeable injury or illness, such as arthritis or a broken bone. That doesn’t mean that the pain isn’t real; it just means that diagnosing the underlying cause for pain will require many doctor’s visits, tests, and scans.

6- Migraine sufferers are mentally ill.

Migraine disorder is comorbid with several other illnesses, including emotional disorders, but it is still a separate disease in its own right.

The fact that depression and anxiety are highly correlated with migraines doesn’t mean that all migraine sufferers have some sort of mental illness, nor does it prove any causation between migraines and mental illness. Heart disease patients may also be prone to feelings of despair and anger, but that doesn’t mean they are mentally ill, either. It only means that where a certain illness (like migraine) exists, emotional problems (depression, anxiety) are often, but not always, also a factor.

7- Only medication can relieve migraines.

Migraine prevention requires a multi-pronged approach.

Managing migraines is a lifetime pursuit that involves a strict routine of healthy dieting, exercise, stress reduction, avoiding migraine triggers, and yes, finding the right medication for migraine prophylaxis. None of these things will “cure” migraines, as there is no known cure, but they can help you achieve a level of neurological health that is conducive to a life without migraine headaches.

Rude Headaches, Ruder Pharmacists- 6 Ways to Avoid Conflict

10 Migraine Myths and Misperceptions, Debunked

8- Chronic pain is only for old people.

Migraine sufferers usually experience their worst migraines in their 30s and 40s.

It’s true that your muscles and bones become weaker with age, resulting in painful arthritis and osteoporosis.  Still, a large number of middle-aged adults between the ages of 35 and 50 experience severe chronic pain symptoms such as rheumatoid arthritis, back pain, fibromyalgia, chronic fatigue syndrome, and migraine headaches.

9- Complaining about migraine headaches means that you’re weak.

Giving voice to my pain is the first step towards treating it.

Unless you acknowledge that constant headaches, nausea, and fatigue are making it difficult for you to manage life, then you will never get the treatment you deserve.  It takes incredible courage to admit that you are in pain, and even more courage and stick-to-itiveness to go through the motions of finding the right migraine treatment for your pain.  There are many ups and downs in chronic pain management, and only positive thinking and strength of character will see you through.

10- If you need opioids, then you must be a junkie.

There’s a difference between addiction and dependency.

A migraine sufferer using narcotic painkillers to relieve severe pain is not a drug addict. The fact that you use prescription medicine to reduce excruciating pain is reasonable and acceptable, provided you use them as instructed by your physician.

On the other hand, somebody who takes the same medication just to get high, and doesn’t suffer from any kind of chronic pain, is by all accounts a drug addict.

Still, it’s worth noting that certain migraine drugs can have uncomfortable or dangerous side effects, such as memory loss, chronic fatigue, hair loss, weight gain, and headaches (ironically).

Never attempt to wean yourself off a migraine drug on your own- always consult your physician first.

Please tell us…

Do you have any questions or suggestions?  Please leave your comments below.

Share with your friends!

If you found this article helpful, then please share with your friends, family, and coworkers by email, Facebook, or Google+.

Like this? Read more:

Migraine Sufferers, this is where your Pain Pills are going

Coping with Migraines, Part I: 6 Inspirational Truths

Over-the-Counter Migraine Drugs?  Better be nice to your Pharmacist

Images courtesy of FreeDigitalPhotos.net

Coping with Migraines, Part I: 6 Inspirational Truths

Monday, February 13th, 2012


 


 

Do you have migraines, or do migraines have you?  Coping with Migraines is difficult, as migraine attacks can significantly reduce your quality of life, leaving you feeling crippled (only without the wheelchair to prove it).  As a result, migraine sufferers feel depressed because of their inability to lead the kind of lifestyle they once had, or wish they had.  It’s hard to come to terms with chronic pain, but the following tips on coping with migraines should make it a bit easier.

COPING WITH MIGRAINES, Migravent

6 Inspirational Truths is Part I of Coping with Migraines.   Part II, 6 Things NOT to do, discusses unhealthy habits that should be avoided in trying to cope with migraines.

#1) You can maintain a Positive Mental Attitude

COPING WITH MIGRAINES: 12 INSPIRATIONAL TRUTHS, MIGRAVENTWhat’s the first thing you notice in the image above? Is it the black dot?  What about all the whiteness surrounding the black dot- did you notice that?

Recognizing that there is a vast amount of light (or positive energy) that surrounds darkness (migraines) is a crucial step in achieving a positive mental attitude.  It’s easier said than done, and it might take years of practice.  But it’s worth it- studies prove that people with chronic pain illnesses who think positive, pray, and refuse to give up hope are statistically more likely to cope, reduce stress, and reduce their pain symptoms.

COPING WITH MIGRAINES, Migravent

#2) You can talk about it…

Sometimes, sorting out your feelings about migraine illness feels a bit like trying to rake leaves during a storm. If you feel like it, you can talk about how migraine headaches affect your life with friends, family, migraine support groups, or even anybody who will listen.

Overcoming Social Isolation in Migraine Disorder

#3) There’s strength in numbers

Surround yourself with people who make you feel good about yourself, and try to avoid toxic relationships at all costs. Join a support group for migraine patients online, in person, or on Facebook, and seek out new friendships as determinedly as you would seek out a spouse.

COPING WITH MIGRAINES, Migravent

#4) Inspiration is everywhere

Seeing is believing- Gain strength from others who have successfully managed their migraines. Like looking at a before and after picture for weight loss, you’ll see that controlling your migraines is no dream, but a possibility. (This is especially easy to do if you have joined a support group for migraineurs.)

5 Simple Ways to Build a Migraine Support System of Friends

#5) Winding down is key

Practice relaxation and stress reduction techniques. If you have a hard time meditating quietly, then put on some soothing music.  If tinnitus with migraines makes it hard to concentrate, then try playing environmental white noise.

#6) Alternative medicine is beneficial

Managing migraines should be a multi-pronged strategy that doesn’t rely on prescription migraine treatments alone. Rather, it should incorporate healthy lifestyle choices like exercise, relaxation, diet, and natural ingredients for migraines. That doesn’t mean that you have to give up prescribed painkillers in order to benefit.  Many migraine patients are able to improve their body’s natural response to inflammation while using natural ingredients for migraines. In studies, the most valuable dietary nutrients for promoting health with migraines are magnesium, butterbur (PA-free), riboflavin, and coenzyme Q10.

COPING WITH MIGRAINES, Migravent

Please tell us…

If you could offer one piece of advice on coping with migraines, what would it be?  Please share by providing your comments!

Read more about migraine prevention:

Top 20 Simple Lifestyle Modifications to Prevent Migraines

Sources:

The Emotional Pain of Migraines: Coping with Frustration and Guilt

Coping With Migraines and Headaches

5 Free Ways to Support your fellow Migraine Headache Sufferer

Thursday, February 2nd, 2012


 


 

Migraines are a debilitating neurological illness that inflicts millions of sufferers with migraine headaches, nausea, vomiting, hypersensitivity to sounds, scents, and lights, and stroke-like symptoms.  Migraines are linked with epilepsy and increased risk for stroke and heart disease. Why then are so few governmental funds set aside for migraine research, spreading migraine disorder awareness, and providing support for migraine patients?  Here are some ways you can influence migraine funding without spending a dime…

5 FREE WAYS TO SUPPORT YOUR FELLOW MIGRAINE HEADACHE SUFFERER, MIGRAVENT

1- Sign the petition!

Go to the AHDA (Alliance for Headache Disorders Advocacy) website to urge Congressional hearings on the impact of migraine and headache disorders. There are millions of migraine sufferers in the world, but at the time of this blog, a mere 8,231 have signed the petition asking politicians to recognize migraines and other chronic headaches as a debilitating illness that requires more government-funded research.

  • 5 FREE WAYS TO SUPPORT YOUR FELLOW MIGRAINE HEADACHE SUFFERER, MIGRAVENTMigraine attacks plague our soldiers in Iraq and Afghanistan, in addition to the countless US citizens just trying to earn a living and get through a day without debilitating head pain, nausea, and vomiting.
  • Migraines are a recognized source of disability, yet very few grants are allocated towards finding a cure for chronic headaches.
  • The World Health Organization (WHO) reported that migraine headaches account in more “lost years of healthy life” in the USA each year than epilepsy, multiple sclerosis, ovarian cancer, and tuberculosis.
  • To date, the US Congress has never hosted a public hearing on chronic headache disorders like migraines and cluster headaches.

Migraine Atlas Sheds Light on Chronic Headaches around the World

2- Become a Facebook addict!

Explore Facebook (Do a search on migraines) and you’ll find endless Facebook migraine pages devoted to helping out people like you who want to connect with other migraineurs.  Migraines are comorbid with severe depression, so this is a good way to discuss migraine symptoms without feeling as if you’re “complaining.”

5 FREE WAYS TO SUPPORT YOUR FELLOW MIGRAINE HEADACHE SUFFERER, MIGRAVENT

Here are some excellent Facebook pages for migraine sufferers:

PS: Don’t forget to follow Migravent on Facebook too, if you don’t already!

12 Ways to spread Migraine Awareness without saying a Word

3- Keep up with migraine forums and blogs

The Facebook groups mentioned also have a strong presence on the web for migraine advocacy, migraine forums, and personal blogs about managing migraines. They are excellent resources for finding local headache specialists, solving social dilemmas like migraine stigma, and finding out the latest news related to migraines.

Want a Cure for Migraines? 10 Ways you can help

4- Be a 24-hour migraine awareness advocate

You’re going to run into many people throughout your day who have never heard of migraines with aura, think that migraines are caused by stress, and don’t realize that headaches are just one of many horrible symptoms of migraine illness.  They’re bound to make some pretty insensitive comments.  It only takes a few seconds and a well-rehearsed line to (politely) put them in their place.

Here are some good comebacks that won’t offend:

  • “I wish I could just take a few Excedrin for migraines, but unfortunately, my body doesn’t respond to them.”
  • “Your mother-in-law is very lucky to have found a cure for her migraines. If only one cure worked for everybody…
  • “I pray constantly for relief from migraines.”
  • “Sadly, migraines aren’t just in my head- they’re also in my nervous system.”
  • “I would work overtime every day for the rest of my life if it meant I never had to suffer another migraine again.”
  • “I wish it were only a headache- that would be heavenly!”
  • “I’m not antisocial.  It’s just that everything outside my bedroom triggers migraines.”
  • “I’m on disability because without it, I would starve.”
  • “You’re in my prayers, too.”

35 Things you should never tell a Chronic Migraine Sufferer

5- Share this article

If you found this information helpful, please share this with friends, family, coworkers, doctors- anybody who you think would benefit from knowing more about migraine disorder.

Please tell us about any other migraine advocacy groups you appreciate that are not mentioned here.

Read more about migraine support:

5 Simple Ways to Build a Migraine Support System of Friends

6 Migraine Myth-conceptions

Overcoming Social Isolation in Migraine Disorder

Migraines at Work- Can my Employers Fire me from my Job?

Migraine Sufferer to World: It’s not just a Headache, People!


Overcoming Social Isolation in Migraine Disorder

Thursday, January 12th, 2012


 


 

Migraine headaches are excruciatingly painful, exhausting, and scary, but almost worse than the head pain and nausea of migraine disorder is the inevitable sense of isolation- the feeling that you are alone, adrift on a raft amidst a sea of tumultuous waves of pain.  Social isolation is common in chronic pain illness, but by learning some valuable coping skills, you can beat the odds.

One migraine is a lonely number

If you suffer severe migraine attacks-, consuming headaches that prevent you from doing anything but lying in a dark room for hours until the pain recedes- then you’re likely to spend a lot of time by yourself, possibly hours, perhaps days.  For many who get chronic migraines, there is no other option.  Unfortunately, for many migraineurs, the isolation lingers long after the pain disappears.

Fear is…well, fearsome

The need to curl up into a cocoon is physical and mental at the same time, and it’s motivated by fear:

Fear of having a migraine attack when you’re unprepared

This is probably the number one reason that many migraine patients choose to stay home between migraine flare-ups.  It stems from an underlying fear of losing control, which is a symptom of anxiety.  In some cases, fear of having an anxiety attack (or migraine) is worse than the attack itself!

What you can do: If you’re anxious about traveling or going out to eat at a new restaurant, then prepare an emergency “escape plan,” but only use it if you feel strong migraine attack surfacing.  Assign a designated driver.

  • Print out a Google map of nearby pharmacies and emergency clinics.
  • Store a bag of necessary medical supplies in your purse, laptop bag, or car glove compartment.  Include things like a spare pill bottle with migraine medicine, disposable cold/hot packs, and a sleep mask.
  • Make copies of your medical records, and store them on a flash drive.  If you do have a severe migraine that requires attention, then it will be a lot easier to get help from busy ER doctors if you have proof that you’re not just suffering from a common headache.

How to make your own Emergency Migraine Attack Survival Pack

Fear of letting others down- friends, family, coworkers, or caregivers

Chronic illness doesn’t just affect the patient- it permeates over your entire social network.  Friends want to help, but don’t know how.  Coworkers feel awkward, and some make insensitive remarks.  (You’re so lucky you get to stay home!)  Your spouse and children, not realizing the severity of your pain, have unrealistic expectations.  (Mom, can you take me and my friends to the mall after dinner?)
What you can do: You can have a healthier relationship with your friends and loved ones, but it’s not going to happen on its own.  Visiting a family counselor is an excellent way to strengthen communication, providing a safe environment for family members to say what’s on their minds, no holds barred.  You get to air your grievances, they get to ask what’s been on their minds, and a nonbiased professional directs your communication towards the common goal of finding some real solutions.

Want a Cure for Migraines? 10 Ways you can help

Fear of changing social or personal roles

You were once voted most likely to succeed, but now you feel like you’re most likely to wind up in a coma from frequent migraine attacks. It’s hard to go from being the caregiver to being the caregiven.  Once upon a time, you were the decision maker in your marriage…now the roles have switched, and you’re sometimes astonished (and disappointed) at your loved one’s ability to step in and take charge while you’re in the throes of a migraine. When things change drastically, you sometimes want to pull down the curtains, close your eyes, and pray for things to go back to the way they were- before migraines.

What you can do: Rethink the notion of roles.  Who you are is a role that changes invariably, with or without your approval.  You are more than your job title, your illness, or your Facebook username. Like the caterpillar that creates a cocoon and emerges as a butterfly, you can look deep inside yourself, do a mental inventory, and come out empowered.

6 Migraine Myth-conceptions

Fear of losing control of anger

Migraine stigma is the pits- try as you might to rise above it all, some people will continue to disappoint you every time.  We’ve all been in a situation when we’ve felt that others were judging us unfairly or denying us our basic human rights.  Still, that is no reason to pull away from society altogether.

What you can do: Join a community with other migraine patients like yourself! Start by asking around at local hospitals.  There might be a support group in your area where you can shoot the breeze with other chronic pain sufferers who know what you’re going through.  Remember, it’s not called complaining when the feelings are mutual. If you’re a techie, then scour the internet for blogs, online support groups, migraine awareness groups, and social media sites that cater to migraine disorder. By joining even one small Facebook group, you feel less alone, and less likely to lose your temper the next time somebody makes you feel like an outcast.

Best Twitter Pages to Follow for Migraine Sufferers- Top 40

Did you find this useful?  Please feel free to post your comments below!

Sources:

Social isolation: a practical guide for nurses assisting clients with chronic illness- PubMed, NCBI

Fears and Depression In Chronic illness


Migraine Symptoms throughout the Ages- Not a Whole Lot has changed

Wednesday, January 11th, 2012


 


 

If you’ve ever fantasized about drilling a hole in your head to get rid of migraine symptoms, know that you are not alone, and that you are not the first.  Since prehistoric times, migraine attacks have caused immense agony, driving sufferers to try shocking, and often dangerous, experiments to end the constant nausea, vomiting, and excruciating migraine headaches.

MIGRAINE SYMPTOMS THROUGHOUT THE AGES- NOT A WHOLE LOT HAS CHANGED, MIGRAVENT.COM

Don’t try this at home

Archeologists believe that the first migraine treatment might have been trepanation, the drilling of holes into the skull to find relief from migraines (and sometimes life itself).  Cave paintings and skull remains from 9,000 years ago suggest that early man believed that boring a hole into your head would cure migraine headaches, in addition to epileptic seizures, and mental disorders.  So convinced (and desperate) were migraine sufferers to find relief from debilitating headaches and nausea, that trepanation continued to be the migraine treatment of choice until as recently as 17th century Europe.

MIGRAINE SYMPTOMS THROUGHOUT THE AGES- NOT A WHOLE LOT HAS CHANGED, MIGRAVENT.COM

Killer Migraines Might be Fatal after All- Mortality Rates among Migraine Sufferers

Other bizarre (and horrifying) treatments for migraines have included brandishing hot irons to the head, bloodletting, inserting of garlic into an incision made in the temple, and witchcraft.

Ancient Greeks were nauseated by migraines

MIGRAINE SYMPTOMS THROUGHOUT THE AGES- NOT A WHOLE LOT HAS CHANGED, MIGRAVENT.COMHippocrates must have suffered migraines with aura back in 400 BC.  He vividly described typical migraine attacks, from the first symptoms of aura- strange hallucinations, nausea, and disorientation, to pulsating head pain, and then the relief from vomiting.  Ancient Greek physician Galen of Pergamon coined the term “hemicrania” (half-head) to describe the crippling headaches, which was later translated as “migraine.”  Like other contemporary philosophers, he deduced that migraine symptoms like vomiting, queasiness, stomach cramps, and lightheadedness confirmed a connection between the stomach and the brain in migraine illness.

Migraine triggers remain the same

In the Middle Ages, scientists and philosophers identified certain migraine triggers as being the source of migraine attacks.  Early physicians recognized extreme light sensitivity, migraine food triggers, and hormonal changes that afflict women during pregnancy, menstruation, and menopause as common migraine triggers.  Today, scientists confirm over 100 migraine triggers, including food, hormones, weather, air pressure, and lifestyle habits.

MIGRAINE SYMPTOMS THROUGHOUT THE AGES- NOT A WHOLE LOT HAS CHANGED, MIGRAVENT.COM MIGRAINE SYMPTOMS THROUGHOUT THE AGES- NOT A WHOLE LOT HAS CHANGED, MIGRAVENT.COM

Avoiding Migraine Triggers- Here, There and Everywhere

Migraine stigma today

Famous author and migraine sufferer Joan Didion got it right when she said, “That no one dies of migraine seems, to someone deep into an attack, an ambiguous blessing.”

Migraines strike millions of people today, and experts still disagree on exactly what causes migraines and how to treat them. The most widely held belief today is that migraines are neurological, that inflammatory chemicals in the brain interact with your nerves and blood vessels, triggering a migraine attack.  But as any migraineur knows, the ramifications of migraine disorder extend beyond the mere physical pain symptoms.  Migraine patients often suffer depression and anxiety, as family members, friends, and employers fail to recognize their symptoms as a disability, and continue to refer to their migraines as “another headache.”

Read more about migraine symptoms:

Migraine Headaches and Dizziness- Stop the Ride, I want to get off!

Why do Migraines cause Nausea and Vomiting?

Lights…Camera…Migraine! 10 Curious Facts about Light Sensitivity

Sources:

Calcitonin Gene-Related Peptide and Migraine: Implications for Therapy

Digging up Bones; the Excavation, Treatment and Study of Human Skeletal Remains

What is migraine? Controversy and stalemate in migraine pathophysiology- Pubmed, NCBI

Migraine History

Migraine Art Offers an Inside Look into an Invisible Disease

Thursday, January 5th, 2012


 


 

Migraine art exhibits are hard to watch; sometimes gruesome, always disturbing migraine art portrayals of migraine symptoms like migraine aura, excruciating migraine headaches, and stomach-clenching nausea allow migraineurs to give skeptics a glimpse into their struggles with chronic pain.

MIGRAINE ART OFFERS AN INSIDE LOOK INTO AN INVISIBLE DISEASE, MIGRAVENT

Migraine stigma affects everybody

“If only you could see what migraines feel like, you would be more sympathetic.”

That’s the motto of many a migraineur having to deal with agonizing migraine headaches and public skepticism at the same time.  While migraines may happen once or twice per month, their ominous presence lingers 24/7, threatening to disrupt work, pleasure, sleep, and all the other nuances of daily life.

Migraine art raises awareness

“Migraines make me feel useless, depressed, and alone.”

Depression is one of the most troubling aspects of migraine illness. Despair magnifies pain, making it harder to cope with severe headaches, vomiting, nausea, and eye sensitivity.  You feel like you can’t contribute to society, can’t perform your work duties, can’t function in a family unit- all because you never know when the next migraine attack is going to strike.

With the popularity of migraine art, millions of chronic pain sufferers know that they are not alone at all, and that they are part of a society of migraine patients facing the same struggles that they themselves endure.

MIGRAINE ART OFFERS AN INSIDE LOOK INTO AN INVISIBLE DISEASE, MIGRAVENT

What’s that Smell? Migraine Sensitivity and Olfactory Auras

Migraine is a documented illness

“Migraines are not an excuse to get out of work- they’re part of a neurological disorder.”

Migraine art dates back to the 12th century, hundreds of years before doctors first began documenting illustrations of scintillating scotomas, a visual phenomenon that occurs with migraine aura, mere minutes before a migraine attack.

It is widely believed that Lewis Carroll, the man behind the Alice in Wonderland tales, experienced migraine auras frequently, as evidenced by character descriptions like the elusive Cheshire cat, or Alice’s not feeling “quite myself.”

Go Ask Alice: Migraine Auras in Wonderland

Read more about migraines with aura

Migraine Aura Video Simulations: You Tube’s Top 10

Migraine Pain, Portrayed through Art and Poetry

When Migraine Aura with Aphasia leaves you Lost for Words

Sources:

Migraine Aura Foundation

paupauART, Matuque

Cindy McCain Gives Voice to Migraine Syndrome

Tuesday, June 28th, 2011


 


Will Cindy McCain be successful in raising awareness and funds for chronic migraine headache research?  We hope so. Cindy McCain, wife of Senator John McCain,  is one of millions of women who suffer from migraine headaches. Chronic migraine symptoms include severe head pain, nausea, stomach cramping, visual disturbances, and extreme sensitivity to light, sound, and scents.

CINDY MCCAIN GIVES VOICE TO MIGRAINE SYNDROME

“Torture.”

A bottle of spilled perfume served as the Kryptonite to her chronic migraines a year back while Cindy was traveling overseas; the overpowering smell nearly knocked her unconscious.  Her migraine radar went into maximum overdrive, causing a migraine attack unlike any she had ever experienced.  Head throbbing madly, nausea threatening to consume her entire body, Cindy disembarked and returned home.

Cindy speaks up

Since then, Cindy has pledged to do everything in her power to educate American citizens about migraines as a neurological disorder, and to raise funds for migraine treatment.  Currently, Congress favors $13 million towards migraine research, a pitiful sum compared to the $20 billion deficit per year accrued through migraine-related lost wages, disability, and medical bills.  Migraine Sufferer to World: It’s not just a Headache, People!

Cindy feels your pain- really.

Migraine symptoms may discriminate by sex (women get more migraines than men by 3 to 1), but when it comes to wealth and status, they’re an equal-opportunity destroyer.  Unlike popular belief, migraines are not a poor woman’s disease.  Related: 6 Migraine Myth-conceptions


Mrs. McCain describes the following symptoms when speaking to the public about her migraines:

  • Excruciating head pain comparable to Traumatic Brain Injuries, the medical term for head trauma received by soldiers in heavy combat.
  • Ultra-sensitivity to light.  Even a moderate light setting can trigger fierce migraine attacks.  “Sunglasses are a migraine sufferer’s best friend,” she says.
  • Stress-related weight loss.  At 5’7”, Cindy once weighed less than 100 pounds.
  • Because of migraine stigma, Cindy avoided migraine diagnosis until the age of 40, fearing others would think she was “neurotic.”
  • Sleep deprivation led to debilitating migraines that sent her to the emergency room on more than one occasion.
  • Migraine symptoms varied for Cindy.  She often experienced migraine auras, tinnitus (ear ringing), nausea, and blindness in her left eye, depending on the migraine headache trigger.
  • After suffering a stroke in 2004, Cindy stopped taking preventative migraine medications.  She now relies on triptans, a form of abortive migraine treatment.

A cure for migraines or die trying

After addressing a crowd in Philadelphia, Cindy hopes to continue her campaign to Capitol Hill.  Her mission: to convince Congress to raise funds allocated towards migraine research.  Cindy hopes to appeal to them by bringing to their attention the astounding numbers of migraine sufferers, many of whom suffer in silence.

“I’m missing a large part of my life,” she said. “I want to stay active. I want a cure.”

Sources:

Cindy McCain Breaks Her Silence on Migraine ‘Disability’

Migraines: Silent Wounds of War

Cindy McCain’s Secret Struggle with Migraines